On February 28th we commemorated the World Day of Rare Diseases, a very special day for Somos PERA and that we like to dedicate always to its dissemination.
Overcome the ignorance about rare diseases is one of our main goals in this day, this is one of the main problems that we encounter in everyday life. A general ignorance not only about what are rare diseases but also on how they can occur, how they can deal with and what it means.
To answer all these questions it is necessary that i’m proud to be able to present this small compilation of our media participations on the celebration of Rare Diseases Day with information and how our partnership forms a crucial role in the claim of those affected and their families in Aragon:
- Aragon Television: alacarta.aragontelevision.es
- Aragon Radio: aragonradio.es
- Radio 4G Wave Aragonesa: ivoox.com
We hope that it will serve as a source of information and that, in this way, you can get to know a little better not only the rare diseases but also our association and how we work every day to serve as a link of union and support to patients and family members. This entry was posted in News. Save the permalink.
Original article from our friends of Somos Pera: somospera.org